Introduction

The severe BPD focus group includes neonatologists, pulmonologists, multi-disciplinary professionals and parents who are interested in improving the short- and long-term outcomes for infants with severe BPD in level IV regional neonatal intensive care units and their children’s hospitals.

Mission & Goals

The mission of the severe BPD focus group is:

• To improve identification and screening for morbidities in infants with severe BPD
• To improve quality of care and outcomes for infants with severe BPD
• To collaborate with individuals and groups with an interest in severe BPD
• To enhance education for parents of infants with severe BPD
• To provide educational opportunities for junior faculty and fellows who are interested in infants with severe BPD

Accomplishments

Grants:

1. 2012: Friends of Prentice Research Grant: Prediction of Death or Tracheostomy in patients with severe BPD: Dr. Karna Murthy, Ann and Robert Lurie Children’s Hospital, Chicago
2. 2014: Friends of Prentice Research Grant: Differentiating high-performing centers for infants suffering from severe BPD: Dr. Karna Murthy, Ann and Robert Lurie Children’s Hospital, Chicago
3. 2018: Home oxygen therapy for infants with bronchopulmonary dysplasia: balancing infant, parent and health system outcomes, NIH K23HL136525. Joanne Lagatta, MD MS, Medical College of Wisconsin.
4. 2019 Children’s Hospital Orange County, Internal Research Award, “Chronic Respiratory Failure in Late-preterm and Term Infants.” PI:  Michel Mikhael, MD